The validation of an educational database for children with profound intellectual disabilities

African Journal of Disability

 
 
Field Value
 
Title The validation of an educational database for children with profound intellectual disabilities
 
Creator Spangenberg, Karlien Corten, Lieselotte van Rensburg, Winnie Kilian, Elizma McKenzie, Judith Vorster, Hein Jelsma, Jennifer
 
Subject Education database; profound intellectual disability
Description Background: The Western Cape Forum for Intellectual Disability took the South African Government to court in 2010 on its failure to implement the right to education for Children with Severe and Profound Intellectual Disability. Subsequently, multidisciplinary teams were appointed by the Western Cape Education Department to deliver services to the Special Care Centres (SCCs). Initially, minimal information was available on this population.Objectives: The purpose is to document the process of developing and validating a database for the collection of routine data.Method: A descriptive analytical study design was used. A sample of convenience was drawn from individuals under the age of 18 years, enrolled in SCCs in the Western Cape. The team who entered and analysed the data reached consensus regarding the utility and feasibility of each item.Results: Data were collected on 134 children. The omission of certain items from the database was identified. Some information was not reliable or readily available. Of the instruments identified to assess function, the classification systems were found to be reliable and useful, as were the performance scales. The WeeFIM, on the other hand, was lengthy and expensive, and was therefore discarded.Discussion and conclusions: A list of items to be included was identified. Apart from an individual profile, it can be useful for service planning and monitoring, if incorporated into the central information system used to monitor the performance of all children. Without such inclusion, this most vulnerable population, despite court ruling, will not have their right to education adequately addressed.
 
Publisher AOSIS
 
Contributor Department of Health and Rehabilitation Sciences, University of Cape Town
Date 2016-09-23
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — descriptive analytical
Format text/html application/octet-stream text/xml application/pdf
Identifier 10.4102/ajod.v5i1.237
 
Source African Journal of Disability; Vol 5, No 1 (2016); 11 pages 2226-7220 2223-9170
 
Language eng
 
Relation
The following web links (URLs) may trigger a file download or direct you to an alternative webpage to gain access to a publication file format of the published article:

https://ajod.org/index.php/ajod/article/view/237/494 https://ajod.org/index.php/ajod/article/view/237/496 https://ajod.org/index.php/ajod/article/view/237/495 https://ajod.org/index.php/ajod/article/view/237/488
 
Coverage Western Cape 2013-2015 children with profound intellectual disability under 18 year
Rights Copyright (c) 2016 Karlien Spangenberg, Lieselotte Corten, Winnie van Rensburg, Elizma Kilian, Judith McKenzie, Hein Vorster, Jennifer Jelsma https://creativecommons.org/licenses/by/4.0
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