Development and validation of a tool to measure patient experience in chronic disease care

African Journal of Primary Health Care & Family Medicine

 
 
Field Value
 
Title Development and validation of a tool to measure patient experience in chronic disease care
 
Creator Manga, Nayna Harding, Richard de Sa, Angela Murie, Kathleen Namane, Mosedi K. Raubenheimer, Peter J. Hellenberg, Derek A. de Vries, Elma
 
Subject primary health care; family medicine patient experience; patient-reported experience measure; non-communicable diseases
Description Background: There is a global increase in the prevalence of non-communicable diseases and a growing understanding that patients need to be involved in their care. Patient experience should be assessed and the information used to improve on the planning and delivery of health services.Aim: This study described the development and validation of a patient-reported experience measure (PREM) tool which is appropriate for the South African context, to assess self-reported patient experience of chronic care.Setting: The study was conducted at four primary health care facilities in the Cape Town Metropole.Methods: This was a validity and reliability study with multiple phases to develop and determine the psychometric properties of a novel tool. It consisted of three phases, namely: Phase 1 – Consensus Validity; Phase 2 – Face Validity; Phase 3 – Reliability. Phase 1 consisted of an expert panel reaching consensus on a draft tool. Phase 2a consisted of qualitative semi-structured interviews and cognitive interviews. Phase 3 tested the internal consistency of the tool, the time necessary to complete, as well as floor and ceiling effects with 200 questionnaires.Results: The process described resulted in a final questionnaire with n = 10 items in three languages that was easily understood by patients. Internal consistency was determined with the overall Cronbach’s alpha 0.86. This PREM has been named Chronic Care Assessment of Patient Experience.Conclusion: Using best practice guidance in tool construction and validation, we delivered a PREM with the potential to improve the quality of care from the perspective of patients. Implementation studies are now required to determine how best to use this tool in routine practice.
 
Publisher AOSIS
 
Contributor European Union
Date 2018-09-11
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — qualitative
Format text/html application/epub+zip application/xml application/pdf
Identifier 10.4102/phcfm.v10i1.1830
 
Source African Journal of Primary Health Care & Family Medicine; Vol 10, No 1 (2018); 7 pages 2071-2936 2071-2928
 
Language eng
 
Relation
The following web links (URLs) may trigger a file download or direct you to an alternative webpage to gain access to a publication file format of the published article:

https://phcfm.org/index.php/phcfm/article/view/1830/2819 https://phcfm.org/index.php/phcfm/article/view/1830/2818 https://phcfm.org/index.php/phcfm/article/view/1830/2820 https://phcfm.org/index.php/phcfm/article/view/1830/2817
 
Coverage Western Cape, South Africa 2013-2014 patients with chronic diseases attending primary care, 20 in phase 2a, 30 in phase 2b, 200 in phase 3
Rights Copyright (c) 2018 Elma de Vries, Nayna Manga, Richard Harding, Angela de Sa, Kathleen Murie, Mosedi Keanetse Namane, Peter Johann Raubenheimer, Derek Adriaan Hellenberg https://creativecommons.org/licenses/by/4.0
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