Child disability and family-centred care in East Africa: Perspectives from a workshop with stakeholders and health practitioners

African Journal of Disability

Field Value
Title Child disability and family-centred care in East Africa: Perspectives from a workshop with stakeholders and health practitioners
Creator Samia, Pauline Wamithi, Susan Kassam, Amina Tirkha, Melissa Kija, Edward Moges, Ayalew Seal, Arnab Rosenbaum, Peter Armstrong, Robert
Subject Peadiatrics; Neurorehabiltation; Developmental Paediatrics; education cerebral palsy; rehabilitation; quality of life; Africa; family-centred
Description Background: Our understanding of child disability has undergone major changes over the last three decades transforming our approach to assessment and management. Globally there are significant gaps in the application of these 21st century models of care. There is recognition that economic, cultural, and social factors influence transitions in care and there is need to consider contextual factors.Objectives: A two-day workshop brought together key stakeholders to discuss current models of care and their application in the East African context. This article summarises workshop proceedings and identifies a broadly supported set of recommendations that serve to set a direction for health professionals, families, family-based disability organisations, communities and government.Method: Presentations followed by facilitated round-table sessions explored specific themes with participants reporting their responses communally. Future actions were agreed upon by relevant stakeholders.Results: Many barriers exist to care for children with disabilities in East Africa, including stigma and a lack of human and infrastructural resources. In addition, significant disparities exist with regard to access to medication and specialist care. The International Classification of Functioning framework needs to be translated to clinical practice within East Africa, with due recognition of the importance of family-centred care and emphasis on the life course theory for disability care. Family-centred care, educational initiatives, advocacy on the part of stakeholders and involvement of government policymakers are important avenues to improve outcomes.Conclusion: Further education and data are needed to inform family-centred care and multidisciplinary team implementation across East African care contexts for children with disabilities.
Publisher AOSIS
Contributor Aga Khan University
Date 2022-07-29
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Report
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/ajod.v11i0.931
Source African Journal of Disability; Vol 11 (2022); 6 pages 2226-7220 2223-9170
Language eng
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Coverage East Africa 2020 health care workers; policy makers; healthcare advocates
Rights Copyright (c) 2022 Pauline Samia, Susan Wamithi, Amina Kassam, Melissa Tirkha, Edward Kija, Ayalew Moges, Arnab Seal, Peter Rosenbaum, Robert Armstrong