The lived experience of people with upper limb absence living in Uganda: A qualitative study

African Journal of Disability

Field Value
Title The lived experience of people with upper limb absence living in Uganda: A qualitative study
Creator Morgado Ramirez, Dafne Z. Nakandi, Brenda Ssekitoleko, Robert Ackers, Louise Mwaka, Erisa Kenney, Laurence Holloway, Cathy Donovan-Hall, Maggie
Subject Quality of life; assistive technology; disability ableism; amputation; disability; lived experience; psychosocial; upper limb
Description Background: The impact of upper limb absence on people’s lived experiences is understudied, particularly in African countries, with implications for policy and service design.Objectives: The objective of this study was to explore the lived experiences of people with upper limb absence (PWULA) living in Uganda.Method: Informed by preliminary work, we designed a qualitative study employing semi-structured interviews to understand the experience of living with upper limb absence in Uganda. Seventeen adults with upper limb absence were individually interviewed and their interviews were analysed utilising thematic analysis.Results: Seven themes illustrating the impact on the individual’s life after amputation were identified and categorised into (1) living and adapting to life, (2) productivity and participation and (3) living within the wider environment. This study presents three main findings: (1) PWULA need psychological and occupational support services which are not available in Uganda, (2) PWULA want to work, but face multiple barriers to employment and has limited support, combined with the complex parenting and caring responsibilities, (3) the local Ugandan culture and social structures affect the everyday life of PWULA, both in positive and negative ways.Conclusion: This study provides information on the lived experiences of PWULA in Uganda which are lacking in the literature. People with upper limb absence face ableism and hardship underpinned by a lack of formal support structures and policies, which may in turn exacerbate the impact of upper limb absence on multiple facets of life.
Publisher AOSIS
Contributor UK Global Challenges Research Fund through the Engineering and Physical Sciences Research Council and National Institute for Health Research
Date 2022-05-20
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Qualitative methods; semi-structured interviews
Format text/html application/epub+zip text/xml application/pdf application/pdf
Identifier 10.4102/ajod.v11i0.890
Source African Journal of Disability; Vol 11 (2022); 13 pages 2226-7220 2223-9170
Language eng
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Coverage Uganda 2019 7 female; 10 male; mean 37 years old; 11.4 standard deviation
Rights Copyright (c) 2022 Dafne Zuleima Morgado Ramirez, Brenda Nakandi, Robert Ssekitoleko, Louise Ackers, Erisa Mwaka, Laurence Kenney, Cathy Holloway, Maggie Donovan-Hall