Experiences of secondary health conditions amongst people with spinal cord injury in South Africa: A qualitative study

South African Journal of Physiotherapy

Field Value
Title Experiences of secondary health conditions amongst people with spinal cord injury in South Africa: A qualitative study
Creator Pilusa, Sonti I. Myezwa, Hellen Potterton, Joanne
Subject spinal cord injury, rehabilitation secondary health conditions; secondary complications; spinal cord injury; health; wellbeing
Description Background: Secondary health conditions (SHCs) such as pain, pressure sores, sexual problems, bowel and bladder problems are prevalent throughout the lifespan of people with spinal cord injury (SCI). Studies have reported that SHCs decrease life expectancy and increase health care costs. Studies on the lived experience of SHCs are, however, limited.Objectives: To explore the experiences of SHCs amongst people with SCI in a public rehabilitation hospital in South Africa.Method: Face-to-face semi-structured interviews were conducted with people with SCI from August 2018 to July 2019. All interviews were transcribed verbatim and analysed using a content analysis approach.Results: Seventeen people with SCI were interviewed. Participants experienced a range of SHCs. The most common experienced SHC was pain (94%). The main theme that emerged from the analysis was ‘the impact of secondary health conditions on health and well-being’. The categories linked to the impact were SHCs co-occurrence and how SHCs limit function, restrict participation, affect mental health and disrupt lives.Conclusion: We found that SHCs were enormously impactful on our participants’ lives and health, as illustrated by their stories of fear, embarrassment and shame. Understanding people with SCI experiences of SHCs can enhance communication between people with SCI and health professionals and may help develop prevention strategies.Clinical implications: To enhance patient-centred care, health professionals are encouraged to actively listen to patients’ experiences of illness and the impact on health and wellbeing.
Publisher AOSIS
Contributor CARTA, Thuthuka National research foundation
Date 2021-04-06
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — qualitative interviews
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/sajp.v77i1.1530
Source South African Journal of Physiotherapy; Vol 77, No 1 (2021); 8 pages 2410-8219 0379-6175
Language eng
Relation https://sajp.co.za/index.php/sajp/article/view/1530/2374 https://sajp.co.za/index.php/sajp/article/view/1530/2373 https://sajp.co.za/index.php/sajp/article/view/1530/2375 https://sajp.co.za/index.php/sajp/article/view/1530/2372
Coverage South Africa 2018-2019 people with spinal cord injury
Rights Copyright (c) 2021 Sonti I. Pilusa, Hellen Myezwa, Joanne Potterton https://creativecommons.org/licenses/by/4.0