Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation

African Journal of Disability

Field Value
Title Development of self-help groups for caregivers of children with disabilities in Kilifi, Kenya: Process evaluation
Creator Gona, Joseph K. Newton, Charles Hartley, Sally Bunning, Karen
Subject education; primary care; primary health care caregivers; children with disabilities; community-based inclusive development; self-help groups
Description Background: Caring for a child with disabilities in a resource-poor setting brings many challenges to the caregiver. We examined the development of self-help groups for caregivers in a rural part of Kenya.Objectives: To conduct a process evaluation on the development of self-help groups during a 10-month set-up period, focusing on implementation and mechanisms associated with their functional status.Methods: Using a realist evaluation design, we set up 20 self-help groups for 254 caregivers. An evaluation was conducted to investigate implementation and mechanisms of impact. Implementation focused on caregiver registration, community group support and monitoring visit compliance. Data were collected from group registers, records of meetings and field notes. Mechanisms of impact employed a framework of strengths–weaknesses–opportunities–threats to review the groups at the end of the 10-month set-up period.Results: Recruitment resulted in registration of 254 participants to 18 groups – two groups disbanded early. Post-evaluation included 11 active and 7 inactive groups. Compliance with the monitoring visits was consistent across the active groups. All groups engaged in ‘merry-go-round’ activities. The active groups were characterised by strong leadership and at least one successful income generation project; the inactive had inconsistent leadership and had dishonest behaviour both within the group and/or externally in the community. Mediators associated with functional status included the following: available literacy and numeracy skills, regular meetings with consistent attendance by the members, viable income generating projects, geographical proximity of membership and strong leadership for managing threats.Conclusion: Self-help groups have the potential to progress in resource-poor settings. However, critical to group progression are literacy and numeracy skills amongst the members, their geographical proximity, regular meetings of the group, viable income generating projects and strong leadership.
Publisher AOSIS
Contributor CP Trust Fund, Uk KEMRI-Wellcome Trust, Kenya
Date 2020-07-22
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Qualitative research
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/ajod.v9i0.650
Source African Journal of Disability; Vol 9 (2020); 9 pages 2226-7220 2223-9170
Language eng
Coverage Africa 2013-2016 Male nas female; age range 18-68; peasant farmers
Rights Copyright (c) 2020 Joseph K. Gona, Charles Newton, Sally Hartley, Karen Bunning