Child privacy rights: A ‘Cinderella’ issue in HIV-prevention research
Southern African Journal of HIV Medicine
| Field | Value | |
| Title | Child privacy rights: A ‘Cinderella’ issue in HIV-prevention research | |
| Creator | Strode, Ann Elaine Slack, Catherine | |
| Description | Legal debates regarding child participation in HIV research have tended to focus on issues of informed consent. However, much less attention has been given to privacy; accordingly, we classify this as a ‘Cinderella issue’ that has been excluded from ‘the ball’ (academic debate). Here we argue that privacy issues are as important as consent issues in HIV-prevention research. We describe a child’s right to privacy regarding certain health interventions in South African law, and identify four key norms that flow from the law and that could be applied to HIV-prevention research: (i) children cannot have an expectation of privacy regarding research participation if they have not given independent consent to the study; (ii) children may have an expectation of privacy regarding certain components of the study, such as HIV testing, if they consent independently to such services; (iii) children’s rights to privacy in health research are limited by mandatory reporting obligations; (iv) children’s rights to privacy in HIV-prevention research may be justifiably limited by the concept of the best interests of the child. We conclude with guidelines for researchers on how to implement these principles in HIV-related research studies. | |
| Publisher | AOSIS | |
| Date | 2013-09-17 | |
| Identifier | 10.4102/sajhivmed.v14i3.62 | |
| Source | Southern African Journal of HIV Medicine; Vol 14, No 3 (2013); 108-110 2078-6751 1608-9693 | |
| Language | eng | |
| Relation |
The following web links (URLs) may trigger a file download or direct you to an alternative webpage to gain access to a publication file format of the published article:
https://sajhivmed.org.za/index.php/hivmed/article/view/62/91
https://sajhivmed.org.za/index.php/hivmed/article/view/62/90
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