Child privacy rights: A ‘Cinderella’ issue in HIV-prevention research

Southern African Journal of HIV Medicine

Field Value
Title Child privacy rights: A ‘Cinderella’ issue in HIV-prevention research
Creator Strode, Ann Elaine Slack, Catherine
Subject Ethics, law Ethics; law; children; privacy; HIV-prevention research Law
Description Legal debates regarding child participation in HIV research have tended to focus on issues of informed consent. However, much less attention has been given to privacy; accordingly, we classify this as a ‘Cinderella issue’ that has been excluded from ‘the ball’ (academic debate). Here we argue that privacy issues are as important as consent issues in HIV-prevention research. We describe a child’s right to privacy regarding certain health interventions in South African law, and identify four key norms that flow from the law and that could be applied to HIV-prevention research: (i) children cannot have an expectation of privacy regarding research participation if they have not given independent consent to the study; (ii) children may have an expectation of privacy regarding certain components of the study, such as HIV testing, if they consent independently to such services; (iii) children’s rights to privacy in health research are limited by mandatory reporting obligations; (iv) children’s rights to privacy in HIV-prevention research may be justifiably limited by the concept of the best interests of the child. We conclude with guidelines for researchers on how to implement these principles in HIV-related research studies.
Publisher AOSIS
Date 2013-09-17
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Desk review
Format text/html application/pdf
Identifier 10.4102/sajhivmed.v14i3.62
Source Southern African Journal of HIV Medicine; Vol 14, No 3 (2013); 108-110 2078-6751 1608-9693
Language eng
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Coverage South Africa Current Children
Rights Copyright (c) 2013 Ann Elaine Strode, Catherine Slack