Disclosure of human immunodeficiency virus status to children in South Africa: A comprehensive analysis

Southern African Journal of HIV Medicine

 
 
Field Value
 
Title Disclosure of human immunodeficiency virus status to children in South Africa: A comprehensive analysis
 
Creator van Elsland, Sabine L. Peters, Remco P.H. Grobbelaar, Cornelis Ketelo, Patiswa Kok, Maarten O. Cotton, Mark F. van Furth, A. Marceline
 
Subject — Disclosure; Child; Paediatric; HIV; Quality of life; South Africa
Description Background: The extent of disclosure of HIV status to children and adolescents and the context facilitating their disclosure process have received little attention.Objectives: To assess disclosure and provide a comprehensive analysis of characteristics associated with disclosure to children (3–14 years) receiving antiretroviral treatment in a South African semi-urban clinic.Methods: This cross-sectional study used structured interview administered questionnaires which were supplemented with medical record data. Predictors included child, caregiver, clinical and socio-economic characteristics, viral suppression, immune response, adherence, health-related quality of life and family functioning.Results: We included 190 children of whom 45 (23.7%) received disclosure about their HIV status, of whom 28 (14.7%) were partially disclosed and 17 (8.9%) were fully disclosed. Older age of the child and higher education of the caregiver were strongly associated with disclosure. Female caregivers, detectable viral load, syrup formulation, protease inhibitor (PI) regimens with stavudine and didanosine, and self-reported non-adherence were strongly associated with non-disclosure.Conclusion: When children do well on treatment, caregivers feel less stringent need to disclose. Well-functioning families, higher educated caregivers and better socio-economic status enabled and promoted disclosure. Non-disclosure can indicate a sub-optimal social structure which could negatively affect adherence and viral suppression. There is an urgent need to address disclosure thoughtfully and proactively in the long-term disease management. For the disclosure process to be beneficial, an enabling supportive context is important, which will provide a great opportunity for future interventions.
 
Publisher AOSIS
 
Contributor
Date 2019-08-22
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Cohort
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/sajhivmed.v20i1.884
 
Source Southern African Journal of HIV Medicine; Vol 20, No 1 (2019); 10 pages 2078-6751 1608-9693
 
Language eng
 
Relation
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https://sajhivmed.org.za/index.php/hivmed/article/view/884/1579 https://sajhivmed.org.za/index.php/hivmed/article/view/884/1578 https://sajhivmed.org.za/index.php/hivmed/article/view/884/1580 https://sajhivmed.org.za/index.php/hivmed/article/view/884/1577 https://sajhivmed.org.za/index.php/hivmed/article/downloadSuppFile/884/930
 
Coverage — current —
Rights Copyright (c) 2019 Sabine L van Elsland, Remco PH Peters, Nelis Grobbelaar, Patiswa Ketelo, Maarten O Kok, Mark F Cotton, A Marceline van Furth https://creativecommons.org/licenses/by/4.0
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