Life outcomes in adults living with FASD in a rural South African community: A follow-up study

African Journal of Disability

 
 
Field Value
 
Title Life outcomes in adults living with FASD in a rural South African community: A follow-up study
 
Creator Broodryk, Mandi Louw, Jaco G. Acker, Debbie Viljoen, Denis L. Olivier, Leana
 
Subject disability; life course; education; community health prenatal alcohol exposure; persons with disabilities; life course research; fetal alcohol spectrum disorder; fetal alcohol syndrome; fas
Description Background: Even though adults with foetal alcohol spectrum disorder (FASD) are at risk of negative life outcomes, there is no published evidence of this in South Africa, which has the highest estimated FASD prevalence rate globally.Objectives: The purpose of the study was to describe and compare the life outcomes of adults with FASD and adults without FASD in a South African rural community, 16 years after diagnosis.Method: Participants were examined and interviewed regarding their biographical information, knowledge of FASD, information on their family, relationships, home circumstances, education, work and medical history.Results: Adults with FASD were less likely to be in a relationship and more likely to have poor educational outcomes and to be exposed to violence as victim or perpetrator than their peers who did not have FASD. None of the participants with FASD completed secondary school successfully. No differences were found for independent living, employment, health, substance use and legal outcomes, between the foetal alcohol syndrome (FAS) or partial foetal alcohol syndrome (PFAS) and control group.Conclusion: While significant differences existed in certain aspects, differences are not as stark as one would expect between individuals with FASD and controls.Contribution: This study highlights the importance of considering the social context in which a FASD diagnosis is made. The comparative negative impact of an FASD diagnosis and the associated challenges on life outcomes may be less pronounced in rural communities where everyone has fewer opportunities and resources. This can also make the unique needs of persons with disabilities less visible. 
 
Publisher AOSIS
 
Contributor Aware.org Solar Capital De Aar
Date 2024-08-26
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Follow-up study
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/ajod.v13i0.1386
 
Source African Journal of Disability; Vol 13 (2024); 7 pages 2226-7220 2223-9170
 
Language eng
 
Relation
The following web links (URLs) may trigger a file download or direct you to an alternative webpage to gain access to a publication file format of the published article:

https://ajod.org/index.php/ajod/article/view/1386/2823 https://ajod.org/index.php/ajod/article/view/1386/2824 https://ajod.org/index.php/ajod/article/view/1386/2825 https://ajod.org/index.php/ajod/article/view/1386/2826
 
Coverage South Africa; Northern Cape; Emthanjeni Municipality 2001 - 2017 adults living with and without FASD
Rights Copyright (c) 2024 Mandi Broodryk, Jaco G. Louw, Debbie Acker, Denis L. Viljoen, Leana Olivier https://creativecommons.org/licenses/by/4.0
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