African families’ and caregivers’ experiences of raising a child with intellectual disability: A narrative synthesis of qualitative studies

African Journal of Disability


 
 
Field Value
 
Title African families’ and caregivers’ experiences of raising a child with intellectual disability: A narrative synthesis of qualitative studies
 
Creator Mkabile, Siyabulela Garrun, Kathrine L. Shelton, Mary Swartz, Leslie
 
Subject Intellectual Disability intellectual disability; children, families; Africa; caring; experience; culture; services
Description Background: The prevalence of intellectual disability was high in Africa, particularly amongst low socio-economic communities. Despite this, there was limited literature on primary caregivers and parents of people with intellectual disabilities regarding their experience raising an individual with the condition, especially within the African context.Objectives: The aim of the current systematic review was to investigate experiences of caregivers and parents of children with intellectual disability in Africa.Method: We used strict eligibility criteria to identify suitable studies. We identified Medical Subject Headings (MeSH) terms and other keyword terms and, after conducting searches in electronic databases, identified articles that met the inclusion criteria for articles published between 1975 and the end of 2019.Results: 164 articles were assessed for eligibility. Nine studies met the review’s criteria. Six major themes emerged: understanding of intellectual disability (ID), worries about the future, burden of care, lack of services, coping strategies and stigma and discrimination.Conclusion: Caregivers of children with intellectual disability in Africa faced substantial challenges. Current findings suggested that there was the need for both formal and alternative healthcare workers to work together towards an understanding and management of intellectual disability in Africa.
 
Publisher AOSIS
 
Contributor Nil
Date 2021-04-30
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Systematic Review
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/ajod.v10i0.827
 
Source African Journal of Disability; Vol 10 (2021); 10 pages 2226-7220 2223-9170
 
Language eng
 
Relation https://ajod.org/index.php/ajod/article/view/827/1549 https://ajod.org/index.php/ajod/article/view/827/1548 https://ajod.org/index.php/ajod/article/view/827/1550 https://ajod.org/index.php/ajod/article/view/827/1547
 
Coverage Africa 1975 - 2019 Families; caregivers; children
Rights Copyright (c) 2021 Siyabulela Mkabile, Kathrine L. Garrun, Mary Shelton, Leslie Swartz https://creativecommons.org/licenses/by/4.0