The use of diet modifications and third-party disability in adult dysphagia: The unforeseen burden of caregivers in an economically developing country

South African Journal of Communication Disorders


 
 
Field Value
 
Title The use of diet modifications and third-party disability in adult dysphagia: The unforeseen burden of caregivers in an economically developing country
 
Creator Coutts, Kim A. Solomon, Maxine
 
Subject Speech Pathology adult dysphagia; third-party disability; caregivers; food insecurity; economically developing context.
Description Background: One of the interventions for dysphagia is diet modifications, involving a variety of resources and consumables. In South Africa, where 49% of the population live below the poverty line, the necessities for it are not always feasible for the patient and their family. This coupled with the responsibility of caring for a loved one with disability can culminate into caregivers experiencing third-party disability (TPD).Objective: To describe the experiences of TPD of caregivers when implementing dysphagia management strategies at home within an economically developing country context.Methods: This was a qualitative study using phenomenological principles. Data were collected using a semi-structured self-developed interview tool at three tertiary level public sector hospitals. Seven participants and six caregivers were interviewed. Rigour was obtained through credibility, triangulation, transferability, dependability and confirmability. The data were analysed using a thematic content analysis technique following a top-down approach to coding.Results: The use of diet modification is an appropriate management strategy if the patients’ access and contextual limitations have been taken into consideration. It was evident that the caregivers had multiple International Classification of Functioning, Disability and Health domains affected, which restricted their daily functioning including activities, participation and environmental and personal factors.Conclusion: The management of dysphagia needs to be family centred and the caregiver’s role and needs have to be considered by all team members when determining long-term management plans. The specific area of how the caregiver’s quality of life was experienced also required further exploration.
 
Publisher AOSIS
 
Contributor
Date 2020-11-25
 
Type info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion — Qualitative Interview
Format text/html application/epub+zip text/xml application/pdf
Identifier 10.4102/sajcd.v67i1.777
 
Source South African Journal of Communication Disorders; Vol 67, No 1 (2020); 8 pages 2225-4765 0379-8046
 
Language eng
 
Relation https://sajcd.org.za/index.php/sajcd/article/view/777/1406 https://sajcd.org.za/index.php/sajcd/article/view/777/1405 https://sajcd.org.za/index.php/sajcd/article/view/777/1407 https://sajcd.org.za/index.php/sajcd/article/view/777/1404
 
Coverage South Africa Current Adult patients with neurogenic dysphagia
Rights Copyright (c) 2020 Kim A. Coutts, Maxine Solomon https://creativecommons.org/licenses/by/4.0